An Award for Realitynibs!

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WEGO Health had set up a TweetChat to wrap up the 30 day blog challenge in which I had just participated. Everything was moving quickly. Well over 1,000 writers had signed up and presumably a good number of us were TweetChatting.

Towards the end, the Superlatives began. I had never heard of a blog challenge before being invited to participate in the Health Activist Writer’s Month Challenge (HAWMC). By the time I attended the TweetChat however, I knew there would be awards and I hoped I could receive one of them!  Continue reading

International Chronic Fatigue Awareness Day

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It is now thought that the condition which kept Florence Nightingale bedridden for the final 50 years of her life was Chronic Fatigue Syndrome/Fibromyalgia Syndrome. In 1993, May 12 was chosen as the International CFS/FMS Awareness Day because it was Florence Nightingale’s birthday.

Realitynibs is written mostly from a Chronic Fatigue perspective because in my case, those are the dominant symptoms. So on this occasion, the most important thing I would like you to know is that the hardest part with Chronic Fatigue is not the exertion – although that’s hard enough. The hardest part is the inability to recover from exertion.

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Recap HAWMC

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Over the Edge

Extra points if you upload a video of you performing your song! –WEGO Health

I was slightly annoyed when I read these words by WEGO Health on day 11. Hadn’t I already stretched myself incredibly by writing a song?

But it haunted me for the rest of the challenge. I began to think, “The song’s written. Why not perform it?! Have you got the guts? Go on, over the edge with you.”

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Word Cloud

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It Took a Village

The applet required to produce an image for today’s prompt does not run on an iPad. (You may know that I’ve been participating in this blog challenge from London by pushing an iPad to the hilt.) I wish I had known that before the effort I expended trying to make it work! To make matters worse, the owner of the website concerned discourages teachers from assigning his application as homework:

Finally, and with all the respect due to teachers, whom I revere and consider to be the underpaid champions of our future: I wish you wouldn’t assign Wordle as homework. It results in angry emails to me from kids and (especially) their parents, who are understandably frustrated when they can’t get it to work, and feel under the gun to do so.

–Jonathan Feinberg, blog.wordle.net

Oh no! I had to think of something. I was not going to get blown out of the blog challenge on day 30!  Continue reading

Six Sentence Story

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There was paper everywhere. My entire living room was carpeted with test results from the previous two years. I stared at them, uncomprehendingly at first. But after I’d looked back and forth between the tests and Dr. Teitelbaum’s book for a whole weekend, I began to understand how I was going to treat myself. I wrote my protocol down on yet more paper, ordered the first set of supplements and emailed a few questions to the good doctor. The next phase of my recovery had begun.

RELEVANT REALITYNIBS LINKS: Dr Oz – Treatments for Fibromyalgia – Oprah.com and Should I Do Chelation for Heavy Metal Toxicity?

WEGO PROMPT FOR THIS POST: In this day of micro-blogging – brevity is a skill worth honing. Can you tell a story and make it short and sweet? What can you say in six sentences. Check out some here: http://sixsentences.blogspot.co.uk/

This is post 29 of 30 in the Realitynibs.com series for WEGO Health’s Health Activist Writer’s Month Challenge 2012

The First Time I…

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The first time ever I saw your face
I thought the sun rose in your eyes
And the moon and stars were the gifts you gave
To the dark and the endless skies, my love,
To the dark and the endless skies.

The first time I heard this song by Roberta Flack, I was a little girl in Lagos. My father used to make compilations on cassettes rather like I make playlists on my iPod today. I loved singing along as I sat in his car going wherever. But when one particular tape got to First Time Ever I Saw Your Face, I hated it.

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5 Challenges. 5 Small Victories.

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I find that the most difficult aspects of dealing with CFS are almost impossible to articulate. That’s what makes them so challenging…

1 . Doctors and friends only see me when I’m at my best. They don’t see me when I’m holed up at home unable to go out. So it’s difficult for them to understand how serious my condition is.

2. You need your brain to solve this problem but you can’t quite access your brain.

3. Like any crisis, CFS is tough on the relationships in your life. But the added complexity of being in a misunderstood crisis seems to bring the worst out in some people. I call them Chronic Fatigue bullies.  Continue reading

Health Tagline

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Recover. Renew. Redo!

 

RELEVANT REALITYNIBS LINKS: About Realitynibs.com

WEGO PROMPT FOR THIS POST: Give yourself, your blog, your condition, or some aspect of your health a tagline. Make sure it’s catchy!

This is post 26 of 30 in the Realitynibs.com series for WEGO Health’s Health Activist Writer’s Month Challenge 2012

Third Person Post

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She didn’t know it but being followed around by a private detective had changed her. So when at 9 years old she was awoken by a thunderstorm in the night, her first thought was not, “It’s raining.” Instead her instinct was to assume that the light flashing through her bedroom was from a man trying to kidnap her.

Her fears were confirmed by a screeching, squeaky sound. The man had obviously grabbed little Chianugo from next door. The toddler was crying in his arms while he searched the bedroom for Bola so he could kidnap her too.  Continue reading

Health Mascot

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Please see a picture of M2 at the bottom of this post!

It’s hard to believe that there was a time smartphones did not exist. Although it probably would not have made much difference during the first year or so of my CFS experience. Not too long after I was able to enjoy reading again, I was also beginning to spend more time on the sofa than in bed. Then somebody gave me an iPhone.

The words that accompanied my gift seem surprisingly prescient now. My new device was apparently intended as a contribution to my healing. Soon, tracking my daily blood pressure, temperature and weight became a fun game because, well, there was an app for that. I even got to see graphs on my phone that showed the overall trends of my progress. I had access to email, bills and Facebook in the palm of my hand without having to leave my sofa. In those days quite frankly, I often couldn’t leave the sofa or talk on the phone. This meant that my iPhone was my main means of social interaction.  Continue reading