Wednesday July 14 9:57am BREATHING
I was getting what I wanted – my doctor was listening. But I’m now freaking out a little at the outcome. Let me explain.
Myriad variables are tracked and managed with my condition. For example:
- Body temperature This tends to be below normal with CFS patients and in the last couple of months, mine seems to be making it’s way towards normal. Yay.
- Sleep Lots of room for improvement but much better than a few years ago.
What tends to happen is we work actively with a few symptoms at a time and then as they improve a new set percolates to the top for prime attention. And that’s how I found myself telling my doctor about something that was becoming increasingly noticeable. I had insisted he listen because I didn’t feel like I was getting his full attention at first.
Now, I’m trying to keep calm despite his ordering an echocardiogram. Even as I write this my breathing is starting to take a little more effort. Chronic Fatigue is bad enough. But my heart too?!
Bill is picking me up at 2:15pm to take me to Stanford. I’ll let you know how this turns out.
5:40pm SAFE & SOUND
I have just returned home. This means my fear that someone would say “Your heart’s terrible. You can’t leave the hospital!” did not materialize. Somehow I must wait to receive the test results. I tried but couldn’t read the technician’s face. She’s good!
Wednesday July 28 5:28pm NEW COURSE
My heart is fine! Well, physically. So now what do we do about the heart symptoms I’ve been experiencing? The answer apparently is aldosterone. It is a hormone produced by the adrenals in addition to cortisol and being depleted of it forces the heart to overcompensate.
Breathe, breathe in the air. Don’t be afraid to care. Leave but don’t leave me. Look around and choose your own ground.
- Pink Floyd