At first I wrote about my health because it was clear I was on some sort of frontier. It had taken more than two years to get diagnosed with Chronic Fatigue Syndrome and even that doctor wasn’t sure how to proceed. “Find an internist who understands Chronic Fatigue,” he’d said.
Sure, no problem. I found just such an internist. Two years later.
During this time I discovered various helpful things. No friend, relative or doctor in my original community knew these things. I had to write them down! I had to provide the information that would have helped me at the beginning of this undesired journey. I had critical, health-saving information in my hands and I had to pass it on to anyone that might get on the same path somewhere behind me.
So I started a private, password-protected blog for friends. Then it became a chance to connect. Then it evolved into stories from this incredible recovery journey. Then I found out that this chemistry and computer science nerd was good at storytelling. Then I realized how powerful stories are and gasped as I started a new, public blog.
Finally, I discovered that storytelling is an art eligible for official non-profit status which was granted in 2010. But it was not just Realitynibs.com that had been born. Somehow this had all led to me. The me that had always been meant to be.
Relevant Realitynibs links: The titles of today’s relevant posts speak for themselves: How I Found Out I’ve Got Chronic Fatigue Syndrome and Cancer? No I Just Need A Chronic Fatigue Doctor. Also relevant is the Realitynibs Manifesto. The About page provides information on Realitynibs.com as a non-profit project, together with some words on the power of storytelling.
WEGO prompt for this post: Reflect on why you write about your health for 15-20 minutes without stopping.
This is post 4 of 30 in the Realitynibs.com series for WEGO Health’s Health Activist Writer’s Challenge 2012.