Key Resources for CFS Recovery

Solving my recovery puzzle has been a slog!

Yesterday I began reading “Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Redefining an Illness“. This was a report released in February 2015 by the Institute of Medicine which had been commissioned by the United States Government to examine the evidence base for ME/CFS. Merely getting through the report brief reduced me to hot tears and I’ve spent the past 24 hours wondering why.

One of many reasons might be that they were describing things I’ve had to figure out on my own in the midst of both medical misunderstanding and social isolation. So I began to wonder, how would I have told myself to pursue recovery given what I know today? Since my case has been unusually severe, I suspect that at least some of the advice that I’m about to give to my past self would be useful for many ME/CFS patients today.  Continue reading

Are You Reading from Mobile or Desktop?

I’ll never forget the day I added mobile compatibility to Realitynibs.com. You can install software packages called plugins into WordPress blogs (Realitynibs is a WordPress blog). I decided that one particular plugin was best for touch smartphones and another plugin for simpler mobiles. I even found an online phone simulator to test my interface for simpler mobiles!

I got into a zone and sat at my desk until it was all done a few hours later. Then I realized I was in trouble. I got up carefully, lay down on the floor and writhed in pain for quite a while…  Continue reading

Pondering Purpose

On September 11 2001, I had just left Sun Microsystems. The plan was to spend a few weeks recovering from the extreme burnout I was feeling, then get another job.

Somehow, my plan changed after planes were crashed into New York, Virginia and Pennsylvania. I felt compelled, by a force that would not be denied, to follow a path closer to my heart. That turned out to be starting my Evangelist Marketing business.  Continue reading

What Do You Think of the New About Page?!

 

Money, money money. According to our research, many artists feel uncomfortable with money…talking about it, asking for it, including it in the conversation around their art. Get over it!

In 2010, I was delighted to discover that my storytelling and blogging work qualified as art eligible for Fractured Atlas membership. Having tried many things that unfortunately, had to be given up for lack of sufficient strength and stamina, I had been wondering how I might earn a living again. The existence of Fractured Atlas suggested that I should make a business of my new cause.

After applying for fiscal sponsorship, I took a few online courses. The first course began with the above quote. Gasp! I had to stop and think about this. Like most people I know, my only interaction with the non-profit world had been as a donor. This was my first experience as an official artist and as a member of the non-profit sectorContinue reading

Chronic Fatigue Wardrobe

Or, How to Build a Wardrobe on the Internet

I can do anything as long as I can figure out what to wear for it. That’s right, I said it! You might think that makes me a ridiculously shallow fashionista. But it’s merely an outward expression of inner, even spiritual, preparation.

Wardrobes don’t have to be just for conventionally noble projects such as a job search, pregnancy or going on holiday. They could also be for meeting a long cherished goal or adjusting to a new lifestyle … like a downsized lifestyle. Earning a fraction of what you used to make when Bill Clinton was President or needing to tone down your designer looks in solidarity with your battered community isn’t so bad if you can figure out the appropriate clothes! Continue reading