Category Archives: 3.2 Treatment Protocols

Reports and reviews of treatments.

How I Found Out I’ve Got Chronic Fatigue Syndrome

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Or, Diagnosis Part III

“What did you do today?”

It was January 2007 and I was back in my surgeon’s office, having decided to investigate my condition myself. The plan was to find out whether there was a recurrence of what had led me to surgery in the first place. We’d already ruled out anemia and we now knew that my ultrasound results were great. So why was I still recovering after 16 months?

There was a new face in the mix. Dr. Nutis was doing a fellowship with Dr. Nezhat and had been observing our interaction. Now he’d asked the question that turned out to be pivotal.

“I’ve been preparing for this appointment since about 9am,” was my reply. It was 3 in the afternoon. Also, it had taken a few months for me to return for that day’s ultrasound test since showing up was an unpredictable process. My doctor’s appointments usually got cancelled a few times before I finally made it because on many days I didn’t have the wherewithal to drive anywhere. Continue reading →

Breaking News: XMRV and ME

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I first made a comment about the XMRV virus and it’s connection to CFS/FMS when it hit the news in October 2009. Then in January 2010, I ended up in the hospital (too tired, sharp knife, lots of blood, firemen, ambulance) and between stitches the doctor told me that the XMRV-CFS link had been debunked.

Not so fast. A few friends have written asking me about the latest news on XMRV so I thought I’d add a post on the subject. Major news outlets such as The Washington Post, The Wall Street Journal and The New York Times reported two days ago that researchers from the FDA and NIH have confirmed the class of viruses in which XMRV belongs, in 86.5% of a sample of CFS/FMS patients. The key here is that the MLV-related viruses, as they’re called, were found in only 6.8% of healthy people. Continue reading →

Heartbeat

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Wednesday July 14 9:57am BREATHING

I was getting what I wanted – my doctor was listening. But I’m now freaking out a little at the outcome. Let me explain.

Myriad variables are tracked and managed with my condition. For example:

  • Body temperature This tends to be below normal with CFS patients and in the last couple of months, mine seems to be making it’s way towards normal. Yay.
  • Sleep Lots of room for improvement but much better than a few years ago. Continue reading →