Do You Think I Should Send This Letter?

Do you think I should send this letter to “Addison? Please tell me by selecting yes or no at the end of this post!

Dear Dr. Addison,

I thought you might like to know what has happened with my health since we last spoke in 2006. You may remember that at the beginning of that year, I complained of fatigue that prevented me from working or leading the life I knew in any way; unquenchable thirst; feeling like I had been hit by a truck after I tried to push through my fatigue and go for a small walk; insomnia; various kinds of digestive distress; and pain in my joints, particularly my wrist. It turns out that I’m suffering from Chronic Fatigue Syndrome/Fibromyalgia Syndrome (CFS/FMS).

Because of problems defining chronic fatigue syndrome and fibromyalgia, I prefer to use the following definition: Continue reading

Cancer? No, I Just Need a Chronic Fatigue Doctor

Or, Diagnosis Part IV

Cancer Scare Number Four

“Casey’s” body language was not matching her words. He was my new, naturopathic doctor and she was saying things like he “just wanted to be sure” and that he wanted me to see someone who knew more about this. But it was Friday and she’d already made a Monday appointment for me to see another doctor. Plus, she was moving around the room with an urgency that made me suspicious.

“Just tell me,” I insisted. “I won’t hold you to it.” Clearly something was on his mind. Clearly she had an opinion on what this latest test result meant.

“It could mean liver or bone cancer.”

I looked at him uncomprehendingly. Then my mind did a quick calculation. Liver or bone? Aren’t those the worst places to get cancer? How did I get here? Again? Continue reading

Chronic Fatigue Syndrome

Polio, Lupus and Multiple Sclerosis are all examples of conditions that were dismissed by most physicians before definitive tests were developed. Chronic Fatigue Syndrome currently suffers from the same lack of understanding as those diseases once did.

Dr. Osias, an OB/GYN whom I had consulted for help with the hormonal aspect of my condition, told me she felt the current medical system is “excellent at treating a single organ or system in crisis”. She went on to talk about standard medical practice being bad at resolving conditions which span multiple systems and trigger crisis for the entire body. I was brought to tears when she lauded me for how far I had come on my own. Continue reading