Tag Archives: CFS/FMS

Brushing My Teeth to Healing

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I put some toothpaste on my toothbrush, and raised the brush to my mouth.

“Oh Gawd,” I thought to myself. “Again with brushing my teeth?”

And that’s how it was. Everyday things were such a struggle that it had become a thing. At one point, I had to start my day by brushing my teeth, then lie down for a while, then wash my face. Showers were carefully timed for days when nothing else was imperative. This was better than when I couldn’t get out of bed but it was hard to feel any gratitude.  Continue reading →

The Courage of My Liver

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There is a pain in my torso as I write this. Last week, one of the liver support supplements I take ran out before I ordered a new jar. “It’ll be fine,” I thought to myself. I was wrong.

As I placed my order online, I realized that this thread of recovery regarding my liver perfectly reflected the overall tapestry of my experience with Chronic Fatigue.

First nobody knew what was causing the pain in my side. Then a doctor in 2008 figured out that it was my liver. Looking back I realize that when I was on a daily regimen in 2006 which included inhaling glutathione and N-Acetyl-Cysteine as prescribed by Dr. Young, this must have really helped my liver. But after keeping up being on a nebulizer every day for over a year, I couldn’t make myself go back. Continue reading →

Scheduled for Monday Broadcast on KQED Radio!

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The essay I submitted to the main NPR station in Northern California has been scheduled for broadcast on Monday September 19! KQED Public Radio is broadcast in Northern California on 88.5 FM and 89.3 FM. You can also listen to their live internet stream in your browser, on your desktop or on your mobile phone. Please see their Listen Live! page for more information.

My segment lasts two minutes and will air three times on Monday. The schedule is listed below in Pacific Time. Please click on a program time to find the corresponding hour for your time zone:  Continue reading →

Pondering Purpose

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On September 11 2001, I had just left Sun Microsystems. The plan was to spend a few weeks recovering from the extreme burnout I was feeling, then get another job.

Somehow, my plan changed after planes were crashed into New York, Virginia and Pennsylvania. I felt compelled, by a force that would not be denied, to follow a path closer to my heart. That turned out to be starting my Evangelist Marketing business.  Continue reading →

Radio Silence – Literally!

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It turned out that I had called Glenn in the middle of a difficult moment for him. I must have been silent for a full fifteen seconds before I finally spoke. “I’m going to run this by you just in case you’d like to do it anyway. Have you ever been curious to see the inside of KQED studios?”

I practically heard his mood lighten over the phone. “That could be interesting,” he replied.  Continue reading →

Learning to Pause

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Learn to pause … or nothing worthwhile will catch up to you.

–Doug King

The above quote gave me, well, pause! Is this what CFS is here to teach me? Maybe that’s what “Morgan” meant when he said I was experiencing a “reality check.”

I’m determined to make good use of this lesson. And when I get further with figuring out how, I’ll tell you all about it!

It’s amazing – the mere process of pursuing this intention is already beginning to reduce my anxiety. See you soon.

One Minute CFS Video

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I often get asked what Chronic Fatigue is like. Each time, I just don’t know what to say. How do I explain the myriad features that add up to this unusual, disabling condition? Or that if I spend spontaneous time with you today, I may not be able to do the things I’ve planned for tomorrow?

Most people can’t fathom what it’s like to feel beyond tired. And I don’t remember what normal feels like. The good news is I also can’t remember what struggling to get out of bed by 5pm felt like.

So, please take a look at this 90 second video by Alex Howard. It does an excellent job of quickly conveying an answer. My favorite part is when the pink teddy bear says to the brown teddy bear, “Have you ever known me to be a lazy person?” If you’re a CFS/ME/Fibromyalgia patient you might want to share this post with your friends and family!

CLICK HERE TO VIEW VIDEO