Bring Your Own Dragon (Please Forward)

Let me give what I have learned from my extreme journey to help slay your dragon. #youhero

— Bola Odulate

A few months ago, I wrote a proposal for patronizing my recovery from Chronic Fatigue Syndrome. I had borrowed the idea from the art world. If an art patron can patronize an artist because they believe in the good his art sends out into the world, then a recovery patron can patronize my recovery because they believe in the good I’m going to accomplish by helping other CFS patients. I included details of my plans for using my experience to help others.

I feel strongly about helping other CFS patients because I have been quite shocked at how difficult it is to get properly diagnosed with CFS (took me two years, many take longer). It is even more difficult to recover – in fact many consider this impossible. When I realized that I had figured out how to recover from my unusually severe, paralyzing case of Chronic Fatigue Syndrome (a.k.a. Myalgic Encephalomyelitis or ME), I knew I had something useful and unique to offer other patients.  Continue reading

Pinboard

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Realitynibs Pinboard for Chronic Fatigue Syndrome

http://pinterest.com/realitynibs/chronic-fatigue-syndrome/

Pin 1

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Chronic Fatigue Syndrome (CFS). Chronic Fatigue and Immune Dysfunction Syndrome (CFIDS). Myalgic Encephalomyelitis (ME). Chronic Fatigue Syndrome/Fibromyalgia Syndrome (CFS/FMS). Fibromyalgia.

Whatever the name or manifestation, I believe that its patients are canaries in the coal mine of our planetary future. They’re here to warn of the crisis that current environmental abuse, inhuman pace of life and the neglect/misunderstanding of emotional health will bring, if we don’t change course. But I’m optimistic about our ability to respond. And I’m committed to doing my part.  Continue reading

Health Haiku

True recovery

Is awakening chosen

— Life’s timeless purpose

Relevant Realitynibs links: These two posts tell of events that profoundly influenced my understanding of the journey of life and my own sense of purpose: Amazing Coincidence and Chance, Fate & Chronic Fatigue.

WEGO prompt for this post: Write a haiku about your health focus. 5 syllables/7 syllables/5 syllables. Write as many as you like.

This is post 6 of 30 in the Realitynibs.com series for WEGO Health’s Health Activist Writer’s Month Challenge 2012

What is Grace?

The winds of grace are blowing perpetually; we have just to raise our sails. –Ramakrishna

I heard somewhere that if you do the work of getting 51% of the way to your goal, grace will carry you the rest of the way. Aren’t I there yet? Grace, where are you? By the way, what is grace?

After my life narrowed to trying to get out of bed, I went through a few medical doctors, then a few naturopathic doctors. Then I went for something radical and tried Dr. Young’s pH miracle protocol. I improved and thought that was the final answer. Sadly, no. Not exactly.  Continue reading

Amazing Coincidence

It was about 3am early to middle 2007. Dr. Young’s protocol was bringing me improvement but my sleep had continued to deteriorate. In desperation, I got out of bed and onto the internet where I discovered “Say Good Night to Insomnia: A Drug-Free Program Developed at Harvard Medical School”.

The data from the first week of tracking my sleep was shocking. Three hours a night? This was no way to heal! As I followed the program in the book, I hit a bump with the step where I was supposed to listen to a “Relaxation Response” recording. The phone number in the appendix was no longer Dr. Jacobs’. Continue reading