Sometimes, a Tantrum Is a Good Thing

Or, What Causes Chronic Fatigue Syndrome & Fibromyalgia?

I was finally having a tantrum. In dealing with about three years of being mysteriously disabled, getting diagnosed with Chronic Fatigue Syndrome and facing unhelpful doctors, my attitude had always been to stay focused and solve the problem. Just the solutions ma’am!

Then I discovered Jacob Teitelbaum’s book From Fatigued to Fantastic. He is a medical doctor who had conducted clinical trials on an effective protocol for treating severe chronic fatigue states. After all that time trying to explain to doctors how debilitating my daily experience was, he was describing it exactly without ever having met me. What?! Continue reading

Do You Think I Should Send This Letter?

Do you think I should send this letter to “Addison? Please tell me by selecting yes or no at the end of this post!

Dear Dr. Addison,

I thought you might like to know what has happened with my health since we last spoke in 2006. You may remember that at the beginning of that year, I complained of fatigue that prevented me from working or leading the life I knew in any way; unquenchable thirst; feeling like I had been hit by a truck after I tried to push through my fatigue and go for a small walk; insomnia; various kinds of digestive distress; and pain in my joints, particularly my wrist. It turns out that I’m suffering from Chronic Fatigue Syndrome/Fibromyalgia Syndrome (CFS/FMS).

Because of problems defining chronic fatigue syndrome and fibromyalgia, I prefer to use the following definition: Continue reading

Heartbeat

Wednesday July 14 9:57am BREATHING

I was getting what I wanted – my doctor was listening. But I’m now freaking out a little at the outcome. Let me explain.

Myriad variables are tracked and managed with my condition. For example:

  • Body temperature This tends to be below normal with CFS patients and in the last couple of months, mine seems to be making it’s way towards normal. Yay.
  • Sleep Lots of room for improvement but much better than a few years ago. Continue reading