One of many reasons might be that they were describing things I’ve had to figure out on my own in the midst of both medical misunderstanding and social isolation. So I began to wonder, how would I have told myself to pursue recovery given what I know today? Since my case has been unusually severe, I suspect that at least some of the advice that I’m about to give to my past self would be useful for many ME/CFS patients today. Continue reading →
I’ll never forget the day I added mobile compatibility to Realitynibs.com. You can install software packages called plugins into WordPress blogs (Realitynibs is a WordPress blog). I decided that one particular plugin was best for touch smartphones and another plugin for simpler mobiles. I even found an online phone simulator to test my interface for simpler mobiles!
I got into a zone and sat at my desk until it was all done a few hours later. Then I realized I was in trouble. I got up carefully, lay down on the floor and writhed in pain for quite a while… Continue reading →
You made it! 30 posts in 30 days! Today, write a recap of your experience. What was your favorite prompt? Least favorite? What have you learned? OR
Describe your HAWMC experience in one word!
I have found this year’s blog challenge harder than last year because I put the added constraint on myself of doing it in a healthy manner! For example, I’m publishing this post on the evening of April 30 rather than staying up too late last night. But you should have seen what it took for me to accept that I was too tired to finish this on April 29… Continue reading →
Create a must follow list for your community on a single social network. Share your top 5-10 tweeters, blogs, or Facebook pages.
If I could recommend only one Facebook page for ME/CFS patients it would be that of the The Optimum Health Clinic. I mean, I transported myself to London from San Francisco so that I could benefit from their programs. You can’t get a bigger endorsement than that!
If you’re on your own either because there’s no ME/CFS doctor in your vicinity or because you’d like an in-depth understanding of your recovery, then my top recommendation for you would be Jacob Teitelbaum’s Facebook page. I think it’s the best approach for physical improvement (outside of diet). Continue reading →
Things began to turn around just before dinner. Phew. That was really close…
The day before, I was proudly taking the bus from the Optimum Health Clinic back to my flat. It was early evening on a Saturday. But because it was December, the sun had set and it was completely dark outside. No matter. I had made it on the bus, and I knew that all I had to do was sit there until it got to Marble Arch. I didn’t even have to worry about the energy draining problem of figuring out which way to walk from the bus stop.
Taking the bus had been a goal since arriving in London in the Spring. I was feeling happy and proud because of my accomplishment! That is, until the bus driver announced that everybody had to get off. They were prematurely terminating the route because Oxford Street was so crowded with Christmas shoppers. Continue reading →
Earlier in this blog challenge, I was paired with Jamee Miller and we swapped guest posts. When I took a look at her blog I instantly learned something about building your blog audience: connect with blogging communities! I have a new blogging goal thanks to Jamee: attend a bloggy boot camp one day…
In the meantime, thank you to the very special Realitynibs readers who are right here, right now ♥♥♥
Day 25 (April 25) – Learning
Share something you learned from another Health Activist (that everyone should know!) OR
Share something you’d like to teach other Health Activists.
Vincent drives a classic black cab around London – one of those old ones where the back doors open in the opposite direction from the front doors. After I hailed him from outside my flat, he asked me what had brought me to London as we headed for the Marylebone Farmers’ Market. I hesitated then told him about being ill for seven years and about getting CFS treatment in England. Vincent responded with his own honesty. He was supposed to be retired but had lost his pension to the UK equivalent of Bernie Madoff. When I paid the fare, Vincent gave me his mobile number so he could take me back home when I was ready. He refused to charge me for the return trip…
I don’t even remember the name of the vendor at the Farmers’ Market whose sage advice about dealing with life’s difficulties brought me to tears. This was right after I’d watched her practically give a pie away to a young mother who seemed like she was struggling to pay, while somehow making it look like the mother was doing her a favor.
The night before my plane took off for London, I finally accepted that I could not physically pull off all the packing and organizing. I desperately posted a request on TaskRabbit.com. A motherly woman in an SUV showed up at my San Francisco apartment early the next morning, packed my bags, and drove a bunch of my stuff to a storage unit.
In case you haven’t figured it out yet, I’m trying to say that the love of friends, relatives and even strangers inspires me, startles me and keeps me going. I could have said that at the beginning but it would have seemed too corny.
I hate to admit this but it’s easier to write stories about strangers – especially in a short post – than about the friends and relatives whose love has left me speechlessly grateful (you know who you are). I will get to that though. It would just take a lot more than a single blog post…
Day 22 (April 22) – Day to Day
Write about something ordinary that’s inspiring to you, something simple, perhaps overlooked, that fuels your activism. OR
Write about the things you couldn’t live without – list 10 things you need or love most.