Key Resources for CFS Recovery

Solving my recovery puzzle has been a slog!

Yesterday I began reading “Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Redefining an Illness“. This was a report released in February 2015 by the Institute of Medicine which had been commissioned by the United States Government to examine the evidence base for ME/CFS. Merely getting through the report brief reduced me to hot tears and I’ve spent the past 24 hours wondering why.

One of many reasons might be that they were describing things I’ve had to figure out on my own in the midst of both medical misunderstanding and social isolation. So I began to wonder, how would I have told myself to pursue recovery given what I know today? Since my case has been unusually severe, I suspect that at least some of the advice that I’m about to give to my past self would be useful for many ME/CFS patients today.  Continue reading

Are You Reading from Mobile or Desktop?

I’ll never forget the day I added mobile compatibility to Realitynibs.com. You can install software packages called plugins into WordPress blogs (Realitynibs is a WordPress blog). I decided that one particular plugin was best for touch smartphones and another plugin for simpler mobiles. I even found an online phone simulator to test my interface for simpler mobiles!

I got into a zone and sat at my desk until it was all done a few hours later. Then I realized I was in trouble. I got up carefully, lay down on the floor and writhed in pain for quite a while…  Continue reading

Day 12: Day of Rest

Kick your feet up! What is your ideal day in? When you’re having a bad day, or a long week – how do you relax, recharge, and reset yourself? #HAWMC

 

Day of Rest

In the middle of writing my post for day 11 of this blog challenge, I managed to stub my toe so badly that the nurse I called insisted I go to the emergency room. X-rays of my foot were taken at UCSF and they confirmed that my little toe was broken. My poor toe was taped to the next one and I was fitted with an orthopedic shoe which I must wear for the next few weeks if I want my toe to heal properly. I was also instructed to ice my foot – which has a lovely black and blue area surrounding my toe – every couple of hours and keep my foot elevated above my heart even when I’m sleeping. (I currently have my foot on my desk as I write this. Thank you yoga!)  Continue reading