What is Realitynibs’ Niche?

No Junk Please!

I began to panic as I looked at the Google Alerts webpage. I wanted to choose an alert that will help me stay on top of Realitynibs’ niche but I immediately felt overwhelmed by the possibility of being deluged with automatic email messages! What to do?

I needed a balance between quantity and quality. I could set alerts for the many names of Chronic Fatigue Syndrome. But as I thought back to the elevator pitch I wrote recently, I realized that my focus within the niche of CFS is demonstrating full recovery. So, I am most interested in the very latest understanding and any news or blogs concerned with that would likely mention the latest name proposed by the Institute of Medicine.  Continue reading

Joined a Tracking Forum!

Hearts are Paving My Way

When Carlos Taylor decided to captain a crowdfund for my recovery, I gave him a big silver heart. He put it on a chain and wore it to work the next day. When a coworker asked him about it, he explained about his friend who is recovering from Chronic Fatigue Syndrome. She replied by telling him about Joey Tuan who had (almost?) recovered from the same condition and then started a forum called HealClick. I’ve been meaning to join ever since Carlos told me that story…

You may know that I’ve challenged myself to 30 posts by July 4. It’s my way of fighting for my freedom from Chronic Fatigue Syndrome and inviting you to join me by letting go of something in your life too! I’m using a template for this challenge called 31DBBB which stands for 31 Days to Build a Better Blog. As it turns out, day 9 asks me to join a forum. Aha!  Continue reading

Favorite Social Network???

 

Would you tell me which social network is your preference for finding new Realitynibs posts? I would really appreciate your help!

 

 

Key Resources for CFS Recovery

Solving my recovery puzzle has been a slog!

Yesterday I began reading “Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Redefining an Illness“. This was a report released in February 2015 by the Institute of Medicine which had been commissioned by the United States Government to examine the evidence base for ME/CFS. Merely getting through the report brief reduced me to hot tears and I’ve spent the past 24 hours wondering why.

One of many reasons might be that they were describing things I’ve had to figure out on my own in the midst of both medical misunderstanding and social isolation. So I began to wonder, how would I have told myself to pursue recovery given what I know today? Since my case has been unusually severe, I suspect that at least some of the advice that I’m about to give to my past self would be useful for many ME/CFS patients today.  Continue reading

Are You Reading from Mobile or Desktop?

I’ll never forget the day I added mobile compatibility to Realitynibs.com. You can install software packages called plugins into WordPress blogs (Realitynibs is a WordPress blog). I decided that one particular plugin was best for touch smartphones and another plugin for simpler mobiles. I even found an online phone simulator to test my interface for simpler mobiles!

I got into a zone and sat at my desk until it was all done a few hours later. Then I realized I was in trouble. I got up carefully, lay down on the floor and writhed in pain for quite a while…  Continue reading

Cultivating You! Ha, ha.

No Toppling

Fifteen minutes into an afternoon rally in front of the Federal Building, Susan Kreutzer looked ready to drop. She sat down on a low wall for a while, letting her husband and half a dozen other protesters carry on while she recovered what precious little energy she could. –Erin Allday, “Chronic Fatigue Patients Protest Lack of Funding“, San Francisco Chronicle

 

I started Realitynibs.com when I realized I was essentially conducting research on myself. I felt compelled to tell the stories of what I was learning about my disease, to help others who might get on the same path behind me. But, just like the patients who attended a rally demanding increased funding for Chronic Fatigue Syndrome, it’s hard on me. I’m proud of getting Realitynibs.com from zero to the first page of a Google search (“chronic fatigue syndrome recovery blog“) but I had to focus only on the quality of my work to get me there rather than simultaneously cultivating readers.  Continue reading

Blog Neighbors!

Analysis

I first became a fan of Karen Cripps’ when our respective blogs were listed on Dr. Jacob Teitelbaum’s Helpful Links page. There was a total of three blogs on the page so it was easy to notice my neighbors!

Anyway, you may know that I’ve challenged myself to 30 posts in six weeks with the intent of achieving this in a healthy sustainable way. I’m using a template created by Darren Rowse for these posts and today’s task requires that I analyze a successful blog in my niche. I have chosen Karen’s, which I assessed as successful because she regularly gets many comments. I know about my readers mostly from measuring the number of hits as well as from private messages.  Continue reading

Take the Freedom Challenge in 5 Baby Steps!

Personal Revolution

1. Think of something you’re ready to let go from your life. As for me, I’m ready to be set free from Chronic Fatigue Syndrome. Sooo ready! You could choose anything. It doesn’t have to be about health.

2. Choose an image, or words, that depicts your freedom. My picture of the Stars and Stripes above is an obvious one.  Continue reading

What is Your Freedom?

Refraction @Large Catches the Sun

Do you have something you’re ready to let go from your life? If so, I hope you’ll consider taking the Realitynibs Freedom Challenge

While you ponder what image or words might effectively depict your freedom, I’d like you to know that I have challenged myself to 30 blog posts in the next six weeks, starting today (Memorial Day) and ending by July 4. This is terrifying because merely taking a shower uses up most of my energy for the day but I’m committed to getting through the next six weeks in a healthy, sustainable way. I’m going to have to be incredibly disciplined about pacing myself yet accepting imperfection. Yikes!

Here’s an elevator pitch I’ve written to get things started. What do you think?  Continue reading