Things began to turn around just before dinner. Phew. That was really close…
The day before, I was proudly taking the bus from the Optimum Health Clinic back to my flat. It was early evening on a Saturday. But because it was December, the sun had set and it was completely dark outside. No matter. I had made it on the bus, and I knew that all I had to do was sit there until it got to Marble Arch. I didn’t even have to worry about the energy draining problem of figuring out which way to walk from the bus stop.
Taking the bus had been a goal since arriving in London in the Spring. I was feeling happy and proud because of my accomplishment! That is, until the bus driver announced that everybody had to get off. They were prematurely terminating the route because Oxford Street was so crowded with Christmas shoppers. Continue reading
Earlier in this blog challenge, I was paired with Jamee Miller and we swapped guest posts. When I took a look at her blog I instantly learned something about building your blog audience: connect with blogging communities! I have a new blogging goal thanks to Jamee: attend a bloggy boot camp one day…
In the meantime, thank you to the very special Realitynibs readers who are right here, right now ♥♥♥
Day 25 (April 25) – Learning
- Share something you learned from another Health Activist (that everyone should know!) OR
- Share something you’d like to teach other Health Activists.
Day 24 (April 24) – Wordless Wednesday
Create a Pinterest board for your health focus. Pin 3 things. Share the image.
Here are the images I used for today’s Pinterest board. Please click here to see the descriptions and captions on Pinterest!
Vincent drives a classic black cab around London – one of those old ones where the back doors open in the opposite direction from the front doors. After I hailed him from outside my flat, he asked me what had brought me to London as we headed for the Marylebone Farmers’ Market. I hesitated then told him about being ill for seven years and about getting CFS treatment in England. Vincent responded with his own honesty. He was supposed to be retired but had lost his pension to the UK equivalent of Bernie Madoff. When I paid the fare, Vincent gave me his mobile number so he could take me back home when I was ready. He refused to charge me for the return trip…
I don’t even remember the name of the vendor at the Farmers’ Market whose sage advice about dealing with life’s difficulties brought me to tears. This was right after I’d watched her practically give a pie away to a young mother who seemed like she was struggling to pay, while somehow making it look like the mother was doing her a favor.
The night before my plane took off for London, I finally accepted that I could not physically pull off all the packing and organizing. I desperately posted a request on TaskRabbit.com. A motherly woman in an SUV showed up at my San Francisco apartment early the next morning, packed my bags, and drove a bunch of my stuff to a storage unit.
In case you haven’t figured it out yet, I’m trying to say that the love of friends, relatives and even strangers inspires me, startles me and keeps me going. I could have said that at the beginning but it would have seemed too corny.
I hate to admit this but it’s easier to write stories about strangers – especially in a short post – than about the friends and relatives whose love has left me speechlessly grateful (you know who you are). I will get to that though. It would just take a lot more than a single blog post…
Day 22 (April 22) – Day to Day
- Write about something ordinary that’s inspiring to you, something simple, perhaps overlooked, that fuels your activism. OR
- Write about the things you couldn’t live without – list 10 things you need or love most.
ME/CFS is essentially a form of extreme burnout. The burnout’s gone past the point of no return and one can no longer simply take a vacation or get some sleep in order to get better.
This blog is all about understanding the triggers, how it feels and how to recover. Those moments of despair do happen and I’ve developed a bag of tools to help me get out of the pit. My favorite one is listening to Mozart’s symphony no 12 in g major. Here’s the delightful menuetto! Continue reading