Key Resources for CFS Recovery

Solving my recovery puzzle has been a slog!

Yesterday I began reading “Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Redefining an Illness“. This was a report released in February 2015 by the Institute of Medicine which had been commissioned by the United States Government to examine the evidence base for ME/CFS. Merely getting through the report brief reduced me to hot tears and I’ve spent the past 24 hours wondering why.

One of many reasons might be that they were describing things I’ve had to figure out on my own in the midst of both medical misunderstanding and social isolation. So I began to wonder, how would I have told myself to pursue recovery given what I know today? Since my case has been unusually severe, I suspect that at least some of the advice that I’m about to give to my past self would be useful for many ME/CFS patients today.  Continue reading

Are You Reading from Mobile or Desktop?

I’ll never forget the day I added mobile compatibility to Realitynibs.com. You can install software packages called plugins into WordPress blogs (Realitynibs is a WordPress blog). I decided that one particular plugin was best for touch smartphones and another plugin for simpler mobiles. I even found an online phone simulator to test my interface for simpler mobiles!

I got into a zone and sat at my desk until it was all done a few hours later. Then I realized I was in trouble. I got up carefully, lay down on the floor and writhed in pain for quite a while…  Continue reading

Recap: You Did It!

Under the Dragon!

 

There are so many parallels between having a chronic illness and being imprisoned. –Fiona Martin, journalist visiting from Sydney, Australia who became my friend on Alcatraz Island.

I am joyfully celebrating publishing two of the thirty intended posts for the Health Activist Writer’s Month Challenge (HAWMC) 2015. Here’s why:

First of all, that’s two posts more than I wrote for HAWMC (pronounced HAH-mick) 2014.

Secondly, I have a gung-ho habit of pushing beyond my limits in a way that interferes with my healing. So this year, I promised myself that I would find a way to participate gently, within my limits, and sustainably. Days 1 to 10 of this challenge went by without any submissions from me. I began to day dream about doing the whole blog challenge in one day. It was very hard to give up my Mega-Type-A-Overachieving ways!  Continue reading