To Sleep, Perchance to Dream?

Now that I’m sleeping five, six even seven hours at a time, rather than two or three hours, I’m starting to feel like an expert! It’s only taken me four or five years and a long list of trial and error:

  1. Recommendations from Say Goodnight to Insomnia
  2. Supplements from SHINE protocol and various doctors
  3. Hypnosis
  4. Ambien & Trazodone
  5. Brain Training
  6. Heparin injections

I still need a lot of help with my sleep but the pills usually work now and I don’t need as many. Other than the obvious difficulty of being awake at night, I would say the most challenging part was the Heparin injections which I had to administer myself. I’ve always been gung ho about doing whatever it takes to recover from CFS/FMS but when it came to teaching me to put a needle in my own flesh, I had to be pushed.  Continue reading

Twelve Chronic Fatigue Triggers and Their Gifts

I happened to reconnect with my father’s sister shortly after I first fell sick six years ago. I hadn’t seen her since I was about seven years old. When I was having difficulty recovering from surgery about a year later, she mentioned that she’d gone through something similar. She too had undergone a myomectomy as a young woman and found herself unable to function afterwards. “How will I ever return to my law practice if I can’t even read the newspaper?” she’d asked herself. It took about six months but she eventually got better.

I now recognize her symptoms as meeting the minimum definition of Chronic Fatigue Syndrome which suggests that I have (1)a genetic predisposition to this disease. Not only did reconnecting with her give me access to this information, I managed to summon the courage to tell her about the inexplicable, special connection I have always felt with her. She told me she’d always felt the same way… Continue reading

Sometimes, a Tantrum Is a Good Thing

Or, What Causes Chronic Fatigue Syndrome & Fibromyalgia?

I was finally having a tantrum. In dealing with about three years of being mysteriously disabled, getting diagnosed with Chronic Fatigue Syndrome and facing unhelpful doctors, my attitude had always been to stay focused and solve the problem. Just the solutions ma’am!

Then I discovered Jacob Teitelbaum’s book From Fatigued to Fantastic. He is a medical doctor who had conducted clinical trials on an effective protocol for treating severe chronic fatigue states. After all that time trying to explain to doctors how debilitating my daily experience was, he was describing it exactly without ever having met me. What?! Continue reading

Chronic Fatigue Wardrobe

Or, How to Build a Wardrobe on the Internet

I can do anything as long as I can figure out what to wear for it. That’s right, I said it! You might think that makes me a ridiculously shallow fashionista. But it’s merely an outward expression of inner, even spiritual, preparation.

Wardrobes don’t have to be just for conventionally noble projects such as a job search, pregnancy or going on holiday. They could also be for meeting a long cherished goal or adjusting to a new lifestyle … like a downsized lifestyle. Earning a fraction of what you used to make when Bill Clinton was President or needing to tone down your designer looks in solidarity with your battered community isn’t so bad if you can figure out the appropriate clothes! Continue reading

Heartbeat

Wednesday July 14 9:57am BREATHING

I was getting what I wanted – my doctor was listening. But I’m now freaking out a little at the outcome. Let me explain.

Myriad variables are tracked and managed with my condition. For example:

  • Body temperature This tends to be below normal with CFS patients and in the last couple of months, mine seems to be making it’s way towards normal. Yay.
  • Sleep Lots of room for improvement but much better than a few years ago. Continue reading