Key Resources for CFS Recovery

Solving my recovery puzzle has been a slog!

Yesterday I began reading “Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Redefining an Illness“. This was a report released in February 2015 by the Institute of Medicine which had been commissioned by the United States Government to examine the evidence base for ME/CFS. Merely getting through the report brief reduced me to hot tears and I’ve spent the past 24 hours wondering why.

One of many reasons might be that they were describing things I’ve had to figure out on my own in the midst of both medical misunderstanding and social isolation. So I began to wonder, how would I have told myself to pursue recovery given what I know today? Since my case has been unusually severe, I suspect that at least some of the advice that I’m about to give to my past self would be useful for many ME/CFS patients today.  Continue reading

Titles: Five Possible Books

Day 27 (April 27) – Titles

  • If you wrote a book about your life, your community, your condition, or your Health Activism – what would you title it? Come up with 5 working titles.
  • What about your biography?
  1. I Am Alive!
  2. Losing a Decade, Gaining You
  3. The Blooming of Bola
  4. The Gift of ME: An Insistent Path to Wholeheartedness
  5. A Canary in Our Midst

Dear reader, which title do you like best?!

Adversity

Day 21 – Adversity

“The flower that blooms in adversity is the rarest and most beautiful of all.” – Mulan True or false? When do you bloom best?

 

When I read the quote in today’s prompt, I wanted to say, “Well it better be true. I’ll make it true for me!” Then I remembered that I’m learning to “allow” rather than “make”. I am allowing this quote to be true.

I get the whole thing about “making” life happen and it’s how I survived parents that I found to be scarily unreliable. But my body has now declared that this is not working. I didn’t know it but I was locked in a stressful approach to life at a fundamental level.  Continue reading

Health Haiku

True recovery

Is awakening chosen

— Life’s timeless purpose

Relevant Realitynibs links: These two posts tell of events that profoundly influenced my understanding of the journey of life and my own sense of purpose: Amazing Coincidence and Chance, Fate & Chronic Fatigue.

WEGO prompt for this post: Write a haiku about your health focus. 5 syllables/7 syllables/5 syllables. Write as many as you like.

This is post 6 of 30 in the Realitynibs.com series for WEGO Health’s Health Activist Writer’s Month Challenge 2012

Brushing My Teeth to Healing

I put some toothpaste on my toothbrush, and raised the brush to my mouth.

“Oh Gawd,” I thought to myself. “Again with brushing my teeth?”

And that’s how it was. Everyday things were such a struggle that it had become a thing. At one point, I had to start my day by brushing my teeth, then lie down for a while, then wash my face. Showers were carefully timed for days when nothing else was imperative. This was better than when I couldn’t get out of bed but it was hard to feel any gratitude.  Continue reading

Learning to Pause

Learn to pause … or nothing worthwhile will catch up to you.

–Doug King

The above quote gave me, well, pause! Is this what CFS is here to teach me? Maybe that’s what “Morgan” meant when he said I was experiencing a “reality check.”

I’m determined to make good use of this lesson. And when I get further with figuring out how, I’ll tell you all about it!

It’s amazing – the mere process of pursuing this intention is already beginning to reduce my anxiety. See you soon.

First Came the Dream…

The dream itself didn’t seem unusual. But I woke up that day in July 2009, really struck by it. It had an insistent quality to it like someone knocking hard on a door to get your attention.

Have you ever had a physical? In my experience, it looks like any other doctor’s appointment. The doctor asks a few questions, orders a few tests. In Hollywood movies however, they seem to involve the patient on a treadmill, hooked up by wires to monitors that are observed by a technician. My dream looked rather like a physical in a Hollywood movie.  Continue reading

Zeeq

“I will call you from time to time,” Zeeq said.

“How will you do that?” Maureen asked.

Stop. Freeze frame. Before I recount any more of this story, I must emphasize that I can scarcely believe it myself. As I prepared to write today, I considered going back to the recordings of my sessions with Maureen. But that’s not necessary. I remember the parts that I am relaying here. And anyway, I am saving my energy for writing. Play on…  Continue reading

Chance, Fate & Chronic Fatigue

The idea came to me like a whisper in my ear. I had picked up my latest Brian Weiss book at the library but was too excited to return home immediately. So I stayed and began reading.

In the middle of the quiet library afternoon, I heard, “Call Parker.”

I had already decided to try Regression Therapy after my encounter with Morgan and was looking for a suitable therapist. But I did not want to call “Parker”!  Continue reading