Medical, Social Misunderstanding of Chronic Fatigue & Fibromyalgia

Or, Diagnosis: Epilogue

I listened in horror to my voicemail.  Somehow, it had recorded a conversation between my father and a friend of his. The incisions on my tummy had only just become painless in September 2005. But no longer. Apparently, my body couldn’t take listening to less than flattering words from my own parent.

Later his friend tried to justify my dad’s behavior. “Devin” had expressed anger because my father was nowhere to be found while his daughter prepared for, then underwent, major surgery. Father was only reacting to that anger. “At any point in all this, did he ask how I am?” I inquired. Silence. Continue reading

How I Found Out I’ve Got Chronic Fatigue Syndrome

Or, Diagnosis Part III

“What did you do today?”

It was January 2007 and I was back in my surgeon’s office, having decided to investigate my condition myself. The plan was to find out whether there was a recurrence of what had led me to surgery in the first place. We’d already ruled out anemia and we now knew that my ultrasound results were great. So why was I still recovering after 16 months?

There was a new face in the mix. Dr. Nutis was doing a fellowship with Dr. Nezhat and had been observing our interaction. Now he’d asked the question that turned out to be pivotal.

“I’ve been preparing for this appointment since about 9am,” was my reply. It was 3 in the afternoon. Also, it had taken a few months for me to return for that day’s ultrasound test since showing up was an unpredictable process. My doctor’s appointments usually got cancelled a few times before I finally made it because on many days I didn’t have the wherewithal to drive anywhere. Continue reading